Warning: The video shown may be a bit graphic as it contains images of post-surgical content. Viewer discretion is advised.
If you've read "My Story" on the blog you may already know, but for those who don't, my youngest daughter was diagnosed with a condition called craniosynostosis. This was something that she was born with.
With her particular diagnosis, she had an overlapping coronal plate and early fusion of the suture.This caused the right side of her head to tilt up, opening her right eye socket drastically and distorting her field of vision. It also caused large soft spots to develop near her right temple.
At 1 and a half she had her first major surgery.
It was the most terrifying experience of our lives. We had no one we could talk to outside the experts. Although many of these cases exist, 1 in 2,000 children a year.
Recently Miss P went in again for a second surgery to finalize what the surgeons could not complete with the first procedure. This was also scary, but we knew more about what would be happening this time which was a bit of comfort, but not much. It's still hard to watch your child, especially your baby, go through something so drastic.
I also decided this time to film our experience this time in hopes that other parents out there that may have children with this condition can find comfort in knowing, you are not alone.